Theme 3: Patient Experience and Patient Reported Outcomes publications

Refinement of the Long-Term Conditions Questionnaire (LTCQ): patient and expert stakeholder opinion.
Kelly L, Potter CM, Hunter C, Gibbons E, Fitzpatrick R, Jenkinson C, Peter M.
Patient Relat Outcome Meas. 2016; 7: 183–193. Published online 2016 Nov 16. doi: 10.2147/PROM.S116987

The Long-Term Conditions Questionnaire: conceptual framework and item development
Peters M, Potter CM, Kelly L, Hunter C, Gibbons E, Jenkinson C, Coulter A, Forder J, Towers AM, A’Court C, Fitzpatrick R
Patient Relat Outcome Meas. 2016; 7: 109–125.Published online 2016 Aug 30. doi: 10.2147/PROM.S104552

Systematic review of measurement properties of patient-reported outcome measures used in patients undergoing hip and knee arthroplasty.
Harris K, Dawson J, Gibbons E, Lim CR, Beard DJ, Fitzpatrick R, Price AJ.
Patient Relat Outcome Meas. 2016 Jul 25;7:101-8. doi: 10.2147/PROM.S97774

Is it worth it? Patient and public views on the impact of their involvement in health research and its assessment: a UK-based qualitative interview study.
Crocker JC, Boylan AM, Bostock J, Locock L.
Health Expect. 2016 Jun 24. doi: 10.1111/hex.12479

Public consultation changes guidance on the use of health-care interventions. An observational study.
Campbell B, Tabiri-Essuman J, Gallo H, Verdiel V, Mandava L, Azhar MA, Powell J
Health Expect. 2016 Jun 17. doi: 10.1111/hex.12476

Themes in daily life of adolescents and young adults with congenital bleeding disorders: a qualitative study.
Limperg, P; Peters M, Gibbons E, Coppens M, Valk C, Grootenhuis M, Haverman L.
Haemophilia May 2016. doi: 10.1111/hae.12961

Challenges, solutions and future directions in the evaluation of service innovations in health care and public health.
Fitzpatrick R, Raine R.
E-book: Health Services and Delivery Research Volume: 4 Issue: 16, May 2016 http://dx.doi.org/10.3310/hsdr04160

Developing approaches to the collection and use of evidence of patient experience below the level of national surveys
Gibbons E, Graham C, King J, Flott K, Jenkinson C, Fitzpatrick R.
Patient Experience Journal: Vol. 3: Iss. 1, Article 12, 28 April 2016. http://pxjournal.org/journal/vol3/iss1/12

Informational and emotional elements in online support groups: a Bayesian approach to large-scale content analysis. 
Deetjen U, Powell J. 
Journal of the American Medical Informatics Association. 2016 Feb 15. pii: ocv190. doi: 10.1093/jamia/ocv190. [Epub ahead of print]

 Harnessing patient feedback data: A challenge for policy and service improvement

J Powell, Boylan A-M, Greaves F. 
Digital Health. Nov 2015
DOI: 10.1177/2055207615617910

The Outcomes and Experiences Questionnaire: development and validation

Gibbons E,  Hewitson P, Morley D, Jenkinson C,  Fitzpatrick R. 
Patient Relat Outcome Meas. July 2015; 6: 179–189.
doi: 10.2147/PROM.S82784

Biosamples as gifts? How participants in biobanking projects talk about donation. 
Locock L, Boylan A-M. 
Health Expectations 2015 Jun 12. doi: 10.1111/hex.12376. [Epub ahead of print]

Perspectives from health, social care and policy stakeholders on the value of a single self-report outcome measure across long-term conditions: A qualitative study. 

Hunter C, Fitzpatrick R, Jenkinson C, Darlington AS, Coulter A, Forder J, Peters M. 
BMJ Open May 2015;5:e006986. doi: 10.1136/bmjopen-2014-006986.

Change in health status in long-term conditions over a one year period: a cohort survey using patient-reported outcome measures
Peters M, Crocker H, Dummett S, Jenkinson C, Doll H, Fitzpatrick R. 
Health Qual Life Outcomes. 2014 Aug 12;12(1):123 doi: 10.1186/s12955-014-0123-2