Our PPI contributors (Patient & Public Involvement) get involved in our research because they want to make a positive contribution. There are many ways in which their impact can be felt; as it relates to the research (e.g. data collection, design and delivery, time and cost) or as it relates to the people involved (e.g. members of the public involved in research, academic researchers and funders).
Some impacts may be seen in the short term (e.g. on patient information documents) others may take longer to be seen or be more complex to identify (e.g. on recruitment of participants to trials).
Here Kath explains how her role as a PPI contributor has had an impact on her (follow this link to find out from many other PPI contributors more about patient & public involvement and why they got involved)
“[…] it’s helped me to create a new way of being in the world and it’s been part of that process. For me, it’s been a very valuable part because it has meant that I can take the experiences that I had previously with me. I’ve met some of the most amazing people doing really incredible things and learnt a huge amount about what’s going on in research that I had no idea about how that happened and how that worked before. So it’s just been massive. It has very much transformed my life really.”
An example of PPI impact on our research
We are doing some research into ‘How can we best address prolonged acute hospital stays in older inpatients with medical-psychiatric multimorbidity?’
The contribution of our lay contributors led to the following changes in the research plan:
- Caregivers’ knowledge of the patient will be actively sought in both the assessment and management plan stages of the intervention.
- Outcomes will include measures of independence and readmission rates.
- Process evaluation will include ward staff’s experience of the intervention (as well as patients’ and caregivers’ experience).
PPI contributor WINS THE 2017 PATIENT LEADER AWARD AT THAMES VALLEY AND WESSEX LEADERSHIP ACADEMY RECOGNITION AWARDS
Karen Maskell won the award for her role in the HealthMaker programme
HealthMakers is a group of volunteers with long term health conditions living in Bracknell and Ascot who:
• Offer peer support to teach others how to manage their long term health conditions. So far our HealthMakers have made a difference to the lives of 50 people in Bracknell
• Deliver training to help others become HealthMakers and make a difference
• Act as Patient Partners who work closely with local health services to improve patient care and quality of life
Our PPI contributors got involved in helping to shape our PPI strategy, PPI Guide for Researchers and Welcome Pack