About Inventive Involvement
The PPI Coordinator for the NIHR CLAHRC Oxford and the Nuffield Department of Primary Care Health Sciences has produced a series of documents aimed to help research staff consider ways of approaching PPI that may be different from what they have done before.
These pdfs are offered as possibilities and not requirements.
They provide ideas of how you can do PPI beyond inviting people to be on trial steering committees or on advisory groups.
They also include ideas for how you may work with people differently in more traditional meetings, using different communication techniques and styles.
We welcome your views on how helpful or not you find these resources – please let us know if anything is unclear and how we could improve it.
Index (alphabetical)
| Analysing data | (.pdf) | How PPI Contributors can help you to interpret the results of your study |
| Art | (.pdf) | Using art to communicate differently for those for whom words are not the best method or to elicit different responses from your stakeholders |
| Children and young people | (.pdf) | How to successfully involve those under 18 |
| Citizens' juries | (.pdf) | A form of public engagement that could help you establish research priorities from a broad spectrum of stakeholders |
| Community Groups | (.pdf) | How to go to voluntary groups, charities or peer support groups to get views on your research |
| Dissemination | (.pdf) | How PPI Contributors can help to publish your results to a broader audience |
| Drama | (.pdf) | Using drama techniques to communicate differently for those for whom words are not the best method |
| Online | (.pdf) | How to garner a PPI contribution from a variety of online methods |
| Open space | (.pdf) | A style of large meeting that enables the audience to set the agenda |
| Participatory action research | (.pdf) | Participants in the research and researchers work together to change the study as it progresses. Often used in developing technologies or devices. |
| Patient advocates | (.pdf) | How some PPI Contributors may be able to assist you in different ways because of their networks and their ability to reach others with their condition to support your PPI |
| Reaching out to recruit | (.pdf) | How you might use public engagement activities or service provision to recruit a PPI contribution from people who would not normally volunteer |
| Speak at events | (.pdf) | How PPI Contributors could help your research have more impact by speaking about it at public events or professional conferences |
| Support network | (.pdf) | How you might run a peer support group for people with the condition that you are studying & their carers, and how this might then lead to them being involved in your studies. |
| Whole communities | (.pdf) | How to involve not just patients or those affected by the service or intervention but the wider range of people within a given community. |